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Participatory Research, Citizen Sciences, Crowd-Innovation and Fab Labs (...)

High Level Workshop See detailled presentation

Participatory Research, Citizen Sciences, Crowd-Innovation and Fab Labs (...)

High Level Workshop See detailled presentation

4th Annual International Conference on Participatory Research, Citizen Sciences, Crowd-Innovation and Fab Labs for Peace and Development - 11 December, 2019, United Nations
One week of High Level Meetings, Crossing the Spheres of the Stakeholders
The halfway point between the PORTO-ALLEGRE FORUM and the DAVOS FORUM ; the platform for the creation and development of projects for peace and SDGs.

Introduction

4th Annual International Conference on Participatory Research, Citizen Sciences, Crowd-Innovation and Fab Labs for Peace and Development - 11 December, 2019, United Nations
Organized by Objectif Sciences International,
in Official Partnership with ECSA, AddictLab, FabLab DigiScope and Université Paris Saclay
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in Partnership of communication with Science Science La science est désormais l’affaire de tous. Découvrez la science d’une manière ludique et active. Nous vous proposons d’en découvrir plus sur nos expéditions à la voile, découverte du plancton. et Cité and Schweiz Forscht

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(Other continental or worldwide networks, please contact us)

Please forward to everybody you know active in the domain.

Below the Call for Contributions (Call for Abstract).

For all proposal of communication for the Program, please use the form on this page.

Thank you to use the form at the bottom of the page to subscribe, including if you want to attend only as audience.

Call for Contribution 2019 :

International Annual Conference on the Participatory Researches, Citizen Sciences, Crwod-Innovation and Fab Labs
in the frame of the 11th GENEVA FORUM at UN, December 10-14, 2019
United Nations, Geneva, Switzerland

The program

REGISTRATION FORM
LIST OF PRESENTATIONS
Wednesday December 11, 2019

from 09:00 to 18:00

Wednesday evening, de 19:00 à 23:00 : Networking Dinner of Science for Peace and Development Networks

FREE ENTRANCE UNDER SUBSCRIPTION (United Nations Access Pass)
Presentations will be held in english and french. Debates and questions will be organized in english and french.
Leading Projects of Education to Science and Citizen Sciences since 1992, and creating 1st Participatory Researches Camps in 2004, the NGO Objective Sciences International have the Special Consultative Status to United Nations. Active in all continents, the NGO organize every year, since 2012, the International Annual Conference on Rights of Nature in United Nations, at which one participate all Governments actives in this domain or interested by these works. From 2016, and every year, OSI organize into the heart of the United Nations hemicycle the International Annual Conference on the Citizen Sciences and Participatory Researches, in order to allow all the actors and operators in these domains to exchange, meet and share directly and at the largest international level.
Crowd Sourced Sciences

Operators of Citizen Sciences who exchange already at national and continental levels (Europe, America, Asia, Africa, Middle-East...) and who desire to exchange together, and share practices and solutions, at the world level, meet together at the Annual International Conference organized in the United Nations.

Fab Labs / Citizen Science / Participative Researches

Several public or associative organizations that are active in the domain of Citizen Sciences or Participative Research, federated or organized, at the national level. The main national actors, the federations, and the specific operators, organized presently at the international level, and are called to meet annually at the end of the civil year, at the International Annual Conference on the Citizen Sciences and the Participative Researches, at United Nations, in Geneva.

This annual space of sharing results and pooling of skills, allow to the actors of the domain to exchange practices, solutions, ideas, needs.

Your Annual Exchanges Resource

In the following of the national and continental meetings that are organized in each country and continent by the local federation, this International Annual Conference at United Nations allow the actors to implement in consultation, or to inform mutually, of progress and actions they lead during the year, or that they have in project.

The participants at this Conference are:

  • Local and regional actors of different countries
  • Thematic Actors by scientific disciplines
  • Regional or national federations
  • Thematic Federations, by scientific disciplines
  • Large Institutions of Science or Education
  • Government departments (Education, Research, Environment, Industry ...) and international associations of Ministries
  • Specialized Journalists (science, environment, education, sustainable development ...)
  • UN agencies (UNDP, UNEP ...)

Subjects that are in the agenda of this year are:

  • Standards and references of exchange on Citizen Science practices between national and international organizations
  • National and international Charts of Citizen Science, examples, projects, ongoing discussions of shares
  • Financing Solutions of the actions of Citizen Science
  • Access of citizen actors to the Research beyond their simple contributions
  • Administrative Status / legislative / recognition / etc of actors of Citizen Science projects
  • The Citizen Research, beyond the digital interface
  • Expected Features of web portals of Citizen Science
  • Services for Citizen Science provided by FabLabs
  • Dissemination and Exploitation of the results to the uninvolved Big Public
  • Road map for the mutual opening of the data collected
Special Chamber by and for the FabLab : FabLab for the Sustainable Development
FAB SDGs is the Macro-Management Initiative created by OSI - Open Science International (Objectif Sciences International) and Fablab Digiscope - Université Paris-Saclay to facilitate the alignment of fablab activities with the Sustainable Development Goals (SDGs).

This workshop of the the Conference, organized in this first collaboration with the GENEVA FORUM will gather experts from the global fablab network who already align with the SDGs together with new comers willing to align their fablab programs with the SDGs. For this very first session at the GENEVA FORUM 2019, the FAB SDGs Working Group will focus on detecting existing and robust programs that already align with the SDGs through an anticipated call for contribution to fablabs. This call will also give new comers the opportunity to expose new programs and activities - even the most disruptive ones - aligning with the SDGs.

During the GENEVA FORUM, we will discuss the panel of strategies to support, to distribute, and to bring the most advanced fablab activities, programs and peoples to align with the SDGs at a global scale, to promote the alignment between the Open Science Practices and the SDGs.

For participating as speaker at this workshop, you just need to register at GENEVA FORUM on this page, then follow instruction your will received to post a proposal of presentation.

For participating as listener and participant, you just need to register at GENEVA FORUM on this page.
REGISTRATION FORM
LIST OF PRESENTATIONS

Detailed Program

Exchanges between stakeholders of the meeting will happen in a round table between speakers and debates with the audience of the Assembly.

Organiser : NGO Objective Sciences International, Geneva
Chairman : Thomas EGLI, Founder of Objectif Sciences International, Head of the GENEVA FORUM
Opening KeyNotes Crowd Innovation : Jan Van MOLL, Head of AddictLab

Here the Programme of the 5 days of GENEVA FORUM of December 2019, where are described the days dedicated to the Conference on Science for Peace and Sustainable Development Goals.

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Programme of GENEVA FORUM 2019 (Public side)

Official Opening Session - Wednesday 12 December 14:00

Session organised in partnership with ECSA, AddictLab, Science et Cité and Objectif Sciences International.

  • Keynotes
  • Remarks on current situation
  • Remarks about concepts of the International Annual Conference

Presentations currently proposed for 2019

Validated Presentations

developing mycocycle: how a citizen scientist will transform how we manage material waste"
what happens when you combine business need, environmental crisis and a 1000’s year old practice? you develop an emerging next-generation, disruptive technology. as a business leader i never thought i’d find myself in the position of citizen scientist to be investing time and resources into the research and development of mushrooms. after decades of working in an industry whose materials are landfilled in an unsustainable manner, it was time to consider if there was a better way to treat and remediate materials so they could be diverted from landfills globally.
mycology quickly started to emerge as a leader in bioremediation of in situ environmental issues but could the same fungal species become resilient enough to tackle the bioremediation of ex situ materials containing toxins like pah, pthalates and heavy metals? 100’s of millions of tons of asphalt based materials are landfilled annually in the united states, with an even larger amount impacting citizens globally. because asphalt and asphalt containing materials are made with carbon black products containing pah’s (a cancer causing agent), these materials are typically landfilled (closed and open) and left to degrade in 400 years or more. with issues of ground water contamination, air borne contaminants, and community growth pushing residents and landfills nearer and nearer each other, should we not consider diverting materials entirely? and the best option after remediation of materials would be to enter them back into manufacturering—becoming a feedstock. mycocycle aims to remediate the worlds most toxic materials and impact the global circular economy in the process.
a citizen scientist, working with a trained mycologist-peter mccoy, we are developing this technology. imagine if business leaders became citizen scientist and developed technology with the lense of economic impact and scalability. imagine if we invested in r&d outside of research labs that allowed us to be nimble and unincumbered? we would like to present the inspiration for the united nations to say that citizen scientists can come in all forms, at all stages in life, and with an ulitmate goal of developing disruptive technologies. we say nothing is impossible.
Ms. Joanne RODRIGUEZ, United States, MYCOCYCLE, LLC, HTTP://WWW.GREENSTRUCTURELTD.COM/
Science of the Future? – Does citizen science provide a means of monitoring water quality for the Sustainable Development Goals (SDGs)?
Citizen science has been suggested as a cost-effective approach to routine environmental monitoring and has received significant interest from the scientific community in recent years. Citizen science may be described as research carried out by members of the public with the aim of gathering scientific information at a scale that might not be possible with professional scientists alone. Indeed, the recent availability of relatively inexpensive water quality monitoring field equipment to emerging citizen science networks suggests great potential for increased spatial coverage far beyond that of traditional, laboratory-based monitoring networks. However, despite general recognition of the potential utility of citizen science in water quality monitoring for example, challenges remain with regard to the incorporation and acceptance of citizen science as a means of producing reliable scientific data that can be used to support decision making around environmental management. This research addresses whether citizen science is a viable means of supporting the UN SDG Indicator 6.3.2 for determining whether waterbodies have good ambient water quality. The research presented examines whether field investigations conducted using citizen scientists can produce high-quality data comparable to that of professional scientists on water quality parameters associated with monitoring methods under SDG Indicator 6.3.2. To this end, the results generated by a group of 30 potential citizen scientists, sampling water quality in “at-risk” Irish water bodies, are compared to those produced in parallel by a professional scientist and professional water quality laboratory analyses. Finally, we discuss how citizen science can have a role in supporting capacity development for the UN Sustainable Development Goal 6 on Clean Water and Sanitation.
Ms.Lauren QUINLIVAN, Ireland, UN Environment GEMS/Water Capacity Development Centre, https://www.ucc.ie/en/gemscdc/
Participatory sciences and spatialized approaches: which mediations? Discovery of tools from the Territoires research unit SCREEN PRESENTATION
Experienced space, landscapes and territories are dimensions at the heart of the themes or theoretical approaches of many research projects related to climate change and environmental protection. One of the difficulties this poses concerns the ability of researchers to engage with society on these spatial dimensions and to make citizens actors in the changes. We present here a number of methodological approaches and participatory science research postures that aim to overcome this pitfall. Through various examples dealing with agroecology, health risks or the management of natural areas, we will show how serious games, mental maps or a spatialized wiki allow citizens to contribute to science
Mr. Sylvain DERNAT, JOHANY François, INRA, France,Territoires research unit, http://www.inra.fr/
Socioeconomic Impact of Participatory Budgeting: The Ukraine Case
Participatory budgeting as a world movement is on the rise. Its core idea is that members of a local community decide where to allocate public funds. Literature assumes that it brings numerous benefits: from a higher quality of life to a more dynamic local economic activity and a better public-private partnership. In Ukraine, within 3 years, almost 120 communities have already introduced some kind of participatory budgeting, which allows to assess its impact. Therefore, the proposed research aims to identify the most contrast cases of participatory budgeting implementation and to evaluate its socioeconomic impact on local communities. The findings of this study can be used by civil society activists and authorities alike to advocate an update of the existing or a creation of new models of participatory budgeting, which have proved their high positive impact as good practices.
Mr. Dmytro KHUTKYY, Ms.Kristina AVRAMCHENKO, Reanimation Package of Reforms, Ukraine, https://rpr.org.ua/en/
The contribution of Design and Architecture
This paper aims to present the fundamental contribution of design and architecture to the topics of the forum. The intervention will be dedicated to illustrating some specific issues by means of images and projects of achievements.
Mr. Roberto ZANCAN, HEAD-Genève, Switzerland, https://www.hesge.ch/head/
Accelerate positive social transformations for a democratic, prosperous, inclusive and peaceful Africa by working with young people
Young people make up more than 65% of the African population. Issues affecting the humanitarian situation and the level of socio-economic development of the continent. The exceptional sociodemographic dynamic that characterizes the continent is frightening to some and hopes to be able, thanks to its youth, to end up with an unprecedented opportunity. In any case, it is undeniably called to the reflection and involvement of young people themselves. Today, the role of young people in promoting democracy, peace and security remains a major part of the African and global agenda.
The challenges of achieving the goals of the 2030 Agenda for Sustainable Development and the African Union Agenda 2063 are particularly challenging for Africa, the only developing region where the Millennium Development Goal is to be achieved. (ODM) of halving poverty between 1990 and 2014 has not been achieved. This exacerbates violence, political instability, gender inequality, severe climate change, conflict and crisis. Therefore, if Africa is to achieve the 2030 and 2063 goals, it is essential to understand and promote the rights of young people, especially young women, in development processes. Involving young people and meeting the expectations of a more just, human rights-based society requires a better understanding of the needs, interests, challenges, potential and diversity of young women and men. In addition, it is important to recognize the crucial role of young people as beneficiaries and practitioners in the promotion and protection of human rights, particularly in the context of the peacebuilding process in fragile states. and post-conflict countries.
As a result, the need to promote the right of young men and women to participate directly and indirectly in political life and public life more generally, their empowerment and the awareness necessary for their qualitative involvement in the process. societal transformation are important to eliminate marginalization and discrimination. Rights of participation and representation are inextricably linked to other human rights, such as the rights to freedom of expression and opinion

Mr. Leopold Sedar DIOUF, Student, Sénégal
Citizen Science Contribution to the UN Sustainable Development Goals
The 2030 Agenda for Sustainable Development, with its 17 goals and 169 targets, constitutes an action plan to address the global challenges facing humanity. Achieving these Sustainable Development Goals (SDGs) requires accurate, up-to-date and timely data to track progress and make informed decisions. Even though rapid development of digital technologies provide a unique opportunity for data availability and use, major challenges still exist to improve the amount, timeliness, coverage and reliability of data. For example, we lack data for the 68% of the environmental SDG indicators (UN Environment, 2019). Citizen science, as a new data source, can contribute to SDG progress by complementing traditional sources of data, along with other non-traditional methods, and enable active citizen involvement in the SDG process.
This talk outlines the results of a research study on the contribution of citizen science to SDG monitoring undertaken by the “WeObserve Citizen Observatories and SDGs Community of Practice (SDGs CoP)” funded by the European Commission. The SDGs CoP brings together citizen science practitioners, researchers and representatives of UN custodian agencies, broader data communities and other key actors in the field to develop an understanding about how to demonstrate the value of citizen science for SDG achievement. The talk will also draw on examples of citizen science initiatives that are already contributing or could contribute to the SDG progress and provide recommendations for design and actions to achieve the SDGs.
Ms. Dilek FRAISL, SEE Linda, International Institute for Applied Systems Analysis (IIASA); CAMPBELL Jillian, UN Environment; FRITZ Steffen, International Institute for Applied Systems Analysis (IIASA); WEHN Uta, IHE Delft Institute for Water Education; WARDLAW Jessica, Natural History Museum UK (NHM); GOLD Margaret, European Citizen Science Association (ECSA); MOORTHY Inian, International Institute for Applied Systems Analysis (IIASA); PIERA Jaume, Spanish National Research Council (CSIC); ARIAS Rosa, Ibercivis Foundation; OLIVER Jessica L., Australian Citizen Science Association (ACSA); MASO Joan, The Centre for Research on Ecology and Forestry Applications (CREAF), Austria, International Institute for Applied Systems Analysis (IIASA), https://www.iiasa.ac.at/


Presentations done in 2018

Validated Presentations

Project Discovery Exoplanets
Project Discovery Exoplanets - a collaboration of MMOS, the University of Geneva and the massively multiplayer online game EVE Online - has been one the most active citizen science project in the recent years. It is a new paradigm: integrating scientific microtasks in major videogames as a seamless gaming experience. Come and hear about what science can gain from such collaborations and how to make a successful integration of games and science.
Mr. Attila SZANTNER, Switzerland, MMOS, http://mmos.ch/
Policy Brief: "Unleashing the Potential of Citizen Science as an Educational Tool towards the Sustainable Development Goals."
In this presentation, we will present you the main ideas of our policy brief, assessing the potential and challenges of citizen science for education and how it can contribute to achieving the Sustainable Development Goals (SDGs). While educational programmes can address specific challenges across almost all of the 17 SDGs, this brief focuses on how citizen science can equip learners with life-long skills, knowledge, and attitudes that foster change-makers, as a direct contribution to SDG 4, Quality Education. For the case of Biodesign, we demonstrate the role that educational practices developed around citizen science can have by presenting a selection of inspiring initiatives currently taking place throughout Europe. In this way, this policy brief aims to support decision makers in education and science policy, including the European Commission, national and state Ministries and other stakeholders in integrating these non-traditional educational practices into existing funding schemes, education policy and curricula towards a more meaningful, transformative learning and teaching.
Ms. Imane BAÏZ, France, CRI / Université Paris Descartes, https://cri-paris.org/
RovOLA: a ROV to study fish populations in peri-alpine lakes POSTER
Peri-alpine lakes support an important diversity of fish species that play a major role in the functioning of these ecosystems and reflect their health status. Fish communities consist of a significant proportion of native species which are of strong socio-economic (widespread anglers and commercial fisheries), great natural and scientific interest.
The RovOLA project was born from the meeting of a Fab lab, the "Fablac" and the CARRTEL research unit (Alpine Center for Research on Lake Ecosystems and Food Webs- INRA - USMB) and consists in working collaboratively to build a Remotely Operated underwater Vehicle (ROV). Outfitted with an high quality camera and high-output lighting system, and remotely controlled from the surface, this robot will be adapted to the needs of researchers to study fish populations, especially breeding sites. The ROV will capture videos and depending on the research being conducted, the ROV will be equipped with various sampling devices (to collect water, fish eggs, sediments…) and sensors. ROVOLA also have an educational value as it will be used in schools to raise awareness about current environmental issues of lake ecosystems.

Ms. Chloe GOULON, UMR CARRTEL, INRA – Université de Savoie Mont Blanc, Thonon, France, https://www6.dijon.inra.fr/thonon/
Aragon implementing Agenda 2030 through public engagement
The Government of Aragon in Spain assumes the mandate of the UN coordinating our regional innovation and sustainability strategies with the agendas for the SDGs. Implementing each of the SDGs requires holistic and coordinated actions among different stakeholders as well as addressing multiple sectors transversally. To implement Agenda 2030, the Presidency of the region has deployed EBRO2030, the plan to achieve sustainable and responsible growth. As part of its activities, EBRO2030 seeks the engagement of all the Aragonese society as well as the added value of evidence-based policy making and scientific advise. At the confluence of both vectors, society and science, we found citizen science. There are recent and important evidences of the need to boost citizen science projects to raise awareness, to implement and to control policies (eg environmental policies). But research-oriented plans are not enough to implement Agenda 2030. In fact, it is needed a number of actions at regional level with all the social, academic, political or business agents. Moreover, alliances with other public bodies at local, national and international scales are also required.
This talk will overview major elements of the Ebro2030 agenda as well as the latest evidences on how citizen science and open research are both impacting SDGs and transforming institutions.

Mr. Fermin SERRANO SANZ, Government of Aragon, Spain, http://www.aragon.es
Dans le sillage des Astyanax au Mexique
"Dans le sillage des Astyanax…" est un projet de recherche participative mené en collaboration avec les équipes du CNRS de Gif-sur-Yvette visant à l’étude des population du poisson ‘Astyanax mexicanus’ qui a la particularité d’avoir deux morphotypes, l’un de surface et l’autre cavernicole, en faisant un modèle idéal pour la recherche sur l’évolution, notamment d’un point de vue génétique.
Les participants à ce projet sont partis cet hiver au Mexique pour aller directement dans les grottes et les rivières où vivent ces poissons afin de récolter des données sur leur habitat ainsi que des échantillons d’ADN.
Les résultats ramenés sont actuellement en cours de traitement au CNRS.
Mr François LAMBERT, 17 ans, Participant des Séjours de Sciences Participatives OSI WILD ATTITUDE, France, www.vacances-scientifiques.com
NATURE IS OPEN SOURCE
Even if the Internet of Things seems to be unavoidable in a globalized world, only very few people really have access to these technologies. That’s why since 2014, La Cool Co has been developing open source hardware devices to facilitate the understanding and custom fabrication of connected objects in order to better understand biology, and our surrounding world.
From "Do It Yourself" experimentations on the ground in Africa, through maker training in the United States, La Cool Co has always supported access to knowledge and its sharing, through product production and implementation. open-source solutions are available to help scientists, companies and individuals in civil society to appropriate complex technical systems, and to bring out non-existent data to promote the understanding of our Mother Earth.
"Nature is Open Source" is less a marketing motto than a call for awareness for each of us, at an individual or community level, to participate in this new but necessary human society, united in an common interest.

Mr. Antoine BERR, OSI - La Cool Co, France, http://lacool.co
Des Puces sur le terrain !
L’objectif pédagogique de "Puces sur le terrain" était d’initier ou de développer les compétences en informatique et en électronique des participants. Le séjour s’inscrit dans un contexte scientifique concret. En effet, OSI Mexique, associé au CNRS, doivent étudier l’environnement du poisson "Astyanax Mexicanus", celui-ci, une fois "piégé" dans les grottes, a évolué différemment de son homologue vivant dans les rivières. Pour cela, nous avons créé un dispositif capable d’effectuer des relevés de différentes données dans l’environnement des grottes mexicaines qui évolue beaucoup. C’est donc dans ce cadre-là que nous avons effectué différentes activités permettant de concevoir ce dispositif.

Les différentes phases du projet furent :
- Sensibilisation : Envoi par voie postale d’une carte comme point de départ d’un jeu de piste numérique permettant aux participants de prendre connaissance du dossier présentant le camp de vacances.
- Contact : Jeu de rôle mettant les participants face à des problèmes liées à l’économie, les technologies et l’écologie. Le but étant d’inciter les jeunes à proposer des solutions.
- Découverte : Cette phase s’est décomposée en deux parties. La première partie a consisté à construire, à partir des composants de bases, des petits projets liés à l’électronique. La deuxième partie a visé à leur apprendre les bases de la programmation par l’utilisation d’associations de blocs à glisser au sein d’un programme.
- Approfondissement : Construire des circuits électroniques plus complexes commandés par des programmes informatiques sur Arduino
- Projet : réalisation de deux prototypes d’enregistrement de données
- Retransmission : présentation informatique de leur séjour et de leurs projets

L’objectif initial a bien été atteint par les participants et l’industrialisation des prototypes réalisés par les éducateurs scientifiques après le séjour va permettre aux chercheurs du CNRS d’emmener 3 boitiers de relevé de données lors de leur prochaine expédition dans les grottes Mexicaines.

Les Participants des séjours de Sciences Participatives OSI CHIP HACK’ADEMY, France, www.vacances-scientifiques.com
Le Programme de Recherche Participative PANTHERA, retour sur 13 ans de Sciences Citoyennes
12 years in the service of the Snow Leopard. From scientific study, to the involvement of local populations, through environment education, OSI-PANTHERA is a human and nature adventure in perpetual motion.

Mr Bastien CHAIX, Co-Responsable du Programme de Recherche OSI PANTHERA, Kirghizstan, www.osi-panthera.org
Sciences Participatives en Paléontologie
Paleozoïc is a young paleontology program born in 2014 from a collaboration between the Geneva Natural History Museum and OSI. It is based on a participative research mission in the Swiss Alps. In Provence, the program had open an initiation camp for children to discover paleontologist’s job. And in 2019, we hope to add a new expedition camp in a famous european dinosaurs area in the South of England.

Mr Christophe GIRONIS, Responsable du Programme de Recherche Participative OSI PALEOZOIC, France, www.vacances-scientifiques.com

Presentations curently in Validation process

No Presentations curently in Validation process

Other potential presentations

Education for citizen engagement in science and societal innovation
Université de Lyon has been running Science Shops since 2013. Since, working with university students, researchers and civil society organisations has allowed the successful implementation of various projects, linking these stakeholders together to work and aspire for a better society. To further equip students, researchers and organisations about the importance to work together, Université de Lyon has the aim of giving proper education and training to all the stakeholders. How to set up these trainings and how to reach all stakeholders is a challenge. The presentation will give a critical and constructive overview on what has been done and how to further embetter these trainings.
Ms. Shailaja BAICHOO, France, Université des sciences de Lyon, http://boutiquedessciences.universite-lyon.fr/
Spurring up research through a collaborative research platform : Seintinelles
Cancer is a tangible reality for all of us. 14 million new cases of cancer are diagnosed every year in the world, and it is estimated that these numbers will increase by 70% in the next 20 years (1). In France, 385,000 new cases are diagnosed each year (2): one in four people will have cancer during their lifetime. Hence, we are all concerned, and it would be beneficial for all, whether directly or indirectly, if tomorrow the illness were better covered and more easily curable. So-called personalised medicine is a hope in cancerology. In order for it to truly be effective for patients, an adapted combination must be identified between a type of cancer, a treatment and a patient. Doctors and researchers must therefore have access to a significant amount of data, to be able to predict how such or such a treatment will operate on such or such a type of cancer, and to adapt it to each individual. This can only be made possible thanks to the civic action of the community as a whole. There will be no personalised medicine without strong collective action. Furthermore, as new technologies have become a strong part of our lives, they are also taking on a role in health and research. The potential and the stakes are there. Researchers used to be technically limited when it came to analysing the data available to them. Today, their analytical potential has increased: what once took months, even years, sometimes takes less than 24 hours nowadays, such as decoding the human genome, for instance. Today, researchers are able to analyse great quantities of data very quickly, namely thanks to technological advances and the advent of digital technology in the health field. But paradoxically, they have a shortage of data at their disposal to do so. Indeed, the recruitment process of participants in a study is long, slow and costly. Each year, hundreds of cancerology research projects are financed in France, yet some never succeed or are heavily delayed, due to a lack of volunteering participants, and despite researchers having gathered the necessary funds and authorisations. This is where the contribution of the general public steps in. By volunteering to make their data available to researchers, they can contribute to accelerating the research process. A recent study has shown that 64% of citizens would be willing to take part in a research project involving their own pathology or that of their loved ones (3). Yet, a dearth of information on the possibility of being involved in key research issues can be felt: Who can one turn to? How to proceed? We were aware of two populations, researchers and the general public, who each needed the other, yet had no canal at their disposal to enable them to collaborate more efficiently, to make advances in cancer research. This observation planted the idea of Seintinelles (4): the first collaborative research platform on cancer in France. Seintinelles is a non profit-making charity under the French law of 1901, supported by the ARC Foundation, the National Cancer Institute and the Chantelle lingerie firm. Its mission is to accelerate the research process by enabling a closer collaboration between the field of research and civil society, whilst increasing all at once quantity, quality and variety of data made available to researchers. The platform launched in 2013 as a first step to this collaboration enabled over 15 research projects on all forms of cancer (and not only breast cancer) to come to fruition, and approximately 17,000 volunteers, men or women, ill or not, to come forward. Whereas recruitment formerly took researchers months to complete, today it only takes a few weeks, even a few days, thanks to the active participation of the general public. References. 1. World Health Organisation, 2012 2.National Cancer Institute. Epidemiology of cancers. http://www.e-cancer.fr/Professionnels-de-sante/Les-chiffres-du-cancer-en-France/Epidemiologie-des-cancers, 2015 3. Ipsos Sopra-Steria Research survey ; May 2016 4. Seintinelles.

Mr Fabien REYAL, France, Association Seintinelles, http://www.seintinelles.com/

Networking for Sustainability: Challenges and Opportunities from Sparkling Science
Sparkling science is a participatory research program in Austria with the specific characteristic: scientistis work side by side with young people in current scientific research projects. As junior colleagues schoolchildren take an active part of the research project, introduce important suggestions into the research approach, collaborate in the conception and conducting of investigations, conduct polls, collect data, interpret it together with the researchers and present the results in creative ways as Science Slams, animated movies, songs…

Challenges and opportunities will be shown from the case of two Sparkling Science projects “Landscape and You-th” (2012-2015) and “BreadTime” (2015-2016): the challenges and opportunities for the research partners, the meaning of reflexion, specifics of data production and evaluation, characteristics of presentation of results.
“BreadTime” focuses on the cultural sustainability and the manifold agricultural and manual practices of the cultivation and processing of grains and the production of bread.

The project “Landscape and You-th – Tracing Flax” focusses on the relationship between local knowledge, landscape and regional identity on the basis of cultivation and manufacturing of the plant flax.

In both projects students from Secondary lower schools and the Secondary upper schools were instructed in the method of oral history and interviewed elder locals about the traditional cultivation. Several media products and performances, like an app, a documentary film, a RAP song… should enhance landscape awareness and sustainable tourism in the region and offer added value for all stakeholders.

Mrs Andrea Sieber, Alps-Adria-University Klagenfurt, Austria, www.uni-klu.ac.at

From a scientific squat to publications in 8 years : Feedbacks from the French Open Lab initiative LA PAILLASSE
While laboratories still are a scare resource for project leaders and joining research effort is unreachable for most citizens, La Paillasse created a fully equipped Open laboratory from second hand equipement opened to everyone in a squat in 2011.
Hosting 40 projects per year as startups, associations and individuals in a 750m2 lab in the center of Paris, 400+ free events/year related to science and tech and new formats of open source collaborative research programs in epidemiology in collaboration with industrials, accompanying the creation of open labs through the world and participating on workgroups with the French ministry of research La Paillasse is experimenting and documenting new ways for academicians and citizens to cooperate.
Experiences of success and failures in diffusion of Open labs and Open science will be discussed.
Mr. Marc FOURNIER, France, La Paillasse,http://www.lapaillasse.org/
STEAM - an all encompassing approach to education
We need to to encourage people to view STEM differently, to perceive Science, Technology, Engineering & Maths as a set of tools with which to create, design, troubleshoot, innovate, and imagine. We want STEAM learning to expand non-linearly and nurture a culture of multidisciplinary disruptive innovation through the power of inspiration and creativity.

We need to nurture an international network with global reach because the challenges we need to solve are global. STEAM needs to be fostered everywhere to catalyze human progress worldwide.

Dr Niamh Shaw, Function (Core), Ireland, www.functioncore.io

Combining Arts and Citizen Science - Mobilising participation
Citizen science approaches have become increasingly popular and embedded into data collection methods and participatory research. Our NGO (Bristol Natural History Consortium) has been working over the last 10 years on developing major public-facing activities that bring together tourism, heritage studies, and the arts alongside citizen science activities and educational activities. What new types of thinking and participation can we encourage through new research methods? What special opportunities does the arts provide for engaging people with the natural world? We look forward to sharing new ideas, practical activities, robust audience research and evaluation, and proposals for new collaborative international activities.

Mrs Savita Custead, Bristol Natural History Consortium, United Kingdom, www.bnhc.org.uk

Recherche participative organisationnelle: guide de pratique
La recherche participative consiste à effectuer des recherches avec les participants plutôt que sur eux. Ces derniers sont donc des partenaires de recherche. Ancrée dans les travaux de Kurt Lewin sur la recherche-action, et ceux de Chris Argyris sur l’apprentissage organisationnel (action science), la recherche participative organisationnelle (RPO) est une forme de recherche participative où les partenaires de recherche sont des universitaires et des membres des organisations impliquées. La RPO combine des méthodes de recherche quantitatives, qualitatives ou mixtes avec l’action afin d’améliorer les pratiques, les services et les politiques en soins de santé. Au sein des organisations de santé, la RPO est utilisée pour mettre en pratique des changements en répondant aux défis, en résolvant des problèmes cliniques et non cliniques, ou en développant et en mettant en œuvre des innovations ou des interventions. Elle peut également renforcer les compétences des professionnels de la santé et contribuer à leur développement professionnel et à la satisfaction des patients. Selon la RPO, les organisations partenaires recueillent des données concernant leur pratique et les utilisent pour réfléchir, comprendre et découvrir des savoirs. Par exemple, la RPO peut être appliquée pour développer une pratique réflexive et entraîner un apprentissage organisationnel Basé sur une revue de littérature systématique et validé par des experts dans le domaine, nous avons une guide de pratique de la recherche participative organisationnelle

Mrs Paula BUSH, Canada, Quebec-SPOR SUPPORT Unit, McGill University, http://unitesoutiensrapqc.ca/

Collaboration of Civil society with National Statistic Offices in Geo Data for a real Data Revolution
The Post-2015 Development Agenda and the Data Revolution raises many opportunities and challenges, such as the innovative use of modern technologies by citizenry in data collection and data presentation with the arising new data sources for official statistics. More recently, the UN World Data Forum was hosted in South Africa under the guidance of the United Nations Statistical Commission with special focus on Development Statistics. Among other objectives, this Forum addressed the intensification of collaboration between governments and civil society stakeholders all around the world. As civil society representatives, we learned from this experience that many governments are truly interested in civil society data base projects. Many NSOs expressed a growing interest in the Openstreetmap (OSM) geodatabase, although some are reluctant and intrigued about how to use data and how to partner with this kind of projects.

On the other hand, many worried government agencies around the world are seeing how their shrinking budgets call for a change in processes, among others for data collection. They are also intrigued about how to use these data and how to work with these civic tech groups, although they may accept that the use of external collaboration can be a great tool to their sustainable development data collection needs. Some have already accepted the assistance and contributions from civil society and other stakeholders, in particular to fill gaps on census coverages and SDG indicators. In this regard, the STATS UP project http://marketplace.data4sdgs.org/resources/stats-filling-statistics-gap-sdg-dissagregating-grassroots-help-nsos aspires to contribute to these needs bringing more allies into the SDG indicators production and census rounds, taking advantage of the effectiveness of the open source and geo open data platforms.

The moment to enhance this collaboration between Statistical Offices and civic tech groups is just right in the case of geo open data. The use of new geodata means a great opportunity for local territories to be represented in a greater scale by means of data collection, leveraging a more human scale approach to assure equality in the attainability of sustainable development goals (SDG) . Probably this is because open geodata offers a richer value to address all tiers, especially 2 and 3 level indicators. They can certainly enhance the SDG dialogue in a more “visible” and direct way. For instance, addressing Goal 3.2 asks to “end preventable deaths of newborns”. This goal claims to know and share globally the “where” of health care services, including midwives, are located and what quality of attention they offer, including distances and available means of transport for the assistance to child birth. The more visible local issues are, the easier to tackle they can be. Other many spatial objects can be found in each of the 17 Goals.

This presentation will condense the conclusions of the UN Data Forum that may need civic tech collaboration and will explain how collaboration can be more efficient based on global agreements to collaborate with governments. It will also portray the Stats Up project of citizens collecting data for the National Statistic Offices in selected countries using indicators and visualizations to illustrate. The lecture will also explain how to work out agreements with public data organizations filling identified gaps in the SDG indicators production and census coverages in candidate countries.

Finally, when possible. it will draw lessons about challenges and opportunities for citizenship to collaborate with governments and statistical offices.
Mr Javier Andres Carranza Torres, GeoCensos Foundation, Bolivia, https://youtu.be/9cfdYdQHZVY


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Témoignages

Par SABIKENGE MUBANGU Prosper

Like any scientific, after having received a lot of experincessur a certain area, ll is the obligation to share with the world so that other impreignent of your experiences to find solutions in the sociètés everywhere else. As well seen its dimension , the RD CONGO my country apprait in quality of its resources a scandal ecological who is at the basis of the many of the réalistés on the mode of life of its population in the local world that urban. As well having worked peandant beaoucoup years to accompany them to draissers local development plans by participatory approaches, it proves judicious that other countries of the world can have the same problem to qualify and apply at home. This is the Why want to participate in this forum.

Par MIKA KC

We have been working for protection of human rights, promotion non-violence social justice peace and Sustainable Development and working for woman victims, child labor, senior citizens rights, environment, rights for disable people, cultural rights, providing law media, free medical camp, shelter, scholarship for orphan children or internal displacement people etc. We are providing various guidelines to our Nepalese students who want go to abrade study by Sabunam Education Consultancy. We are interested to participate in your upcoming Program,

Par Imane Baïz

J'ai beaucoup apprécié la diversité des profils parmi les intervenants et le public, aussi bien en termes de disciplines que de catégories d'âge. Echanger avec les jeunes bénéficiaires des programmes de sciences participatives a été pour moi une des plus belles expériences de ce Forum !


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